DaVinci Green Tea 70 treatment

A Longstanding Treatment for Familial Dysautonomia is Safely Relabeled

A long-standing treatment for Familial Dysautonomia has been safely relabeled under a different company name.  Green Tea-70, originally produced by the company Food Science of Vermont, is now Green Tea-70 now produced by DaVinci Labs. DaVinci’s formulation is identical to the Food Science of Vermont’s version; both contain the same top-quality amount of a key…

PTSD

Dealing with PTSD in the Familial Dysautonomia World – An FD Sibling’s Perspective

If you’re up to date on the FD NOW blog posts, you’ve had a glimpse at PTSD from an FD patient’s perspective as well as an FD parent’s perspective. There are all sorts of environmental, emotional, and physical triggers that can cause stress and anxiety. I have certainly experienced trauma, triggers, and post-traumatic stress coping…

New Treatments for Familial Dysautonomia Coming in 2020

New Treatment for Familial Dysautonomia Arriving in 2020

There are new treatments in the works for those suffering from Familial Dysautonomia!  Drs. Rubin and Anderson, co-directors of the Research Laboratory for Familial Dysautonomia at Fordham University, New York, USA announced the good news.  “We are working on a novel and natural, commonly-consumed, chemical compound that will provide those with Familial Dysautonomia even greater…

FD NOW Crisis Monster

Slaying the Crisis Monster

In the world of Familial Dysautonomia, what is a crisis and what causes crises?  Like most disorders, FD has its own unique vocabulary describing its characteristics.  For example, migraine sufferers experience “auras.”  Epileptic patients have “seizures.” Those with FD endure “crises.”  There are many textbook synonyms for crises including vomiting attacks, hypertensive crises, and autonomic…

FD NOW PTSD Parent Perspective

Dealing with PTSD in the Familial Dysautonomia World – An FD Parent Perspective

In a previous blog article, we explored what it’s like for someone with FD to deal with PTSD, also known as post-traumatic stress disorder.  This article explores PTSD from the FD parent perspective.  Just to review, PTSD often occurs with military veterans.  On the battlefield as soldiers, they suffer great trauma, dodging enemy bullets that…

Getting a Tiny Bit Scientific about Tyramine and MAOI

You may have seen mass media advertisements for prescription drugs called “MAO inhibitors” also known as “MAOI’s”.  These drugs are often prescribed to treat people with depression.  Taking MAOI drugs can be dangerous because they significantly lower or “inhibit” your monoamine oxidase A enzyme, abbreviated MAO-A. MAO-A is a critical enzyme.  MAO-A acts like a…

auction

FD NOW On-line Auction Fundraiser

Every March, over 1000 people log on to browse, shop, and vie for over 150 fun, functional and trendy auction items. The bidding categories include jazzy jewelry, timeless toys, fantastic fine dining, state-of-the-art electronics, marvelous memorabilia, spectacular sporting events, practical gift cards, unique fine art and cool collectibles. Also featured are two spectacular properties.  The first…

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FD NOW 5K Run/Walk for a Cure

Join us annually for the South Florida FD NOW 5K Run/Walk for a Cure in South Florida.  Hosted by Carol U. Alterman, Florida Regional Representative of FD NOW, this exciting fundraiser attracts over 200 runners and raises over $30,000 to benefit the Laboratory for Familial Dysautonomia Research at Fordham University in New York. Contact Information: Call…

ask the expert

FD NOW Ask the Expert Series

Periodically, FD NOW features various experts to address specific needs of the FD community. Our next series, THE GENE SCENE, will be virtually held on Tuesday, October 19th at 7:00pm CST.  Register below.   WHO: Are you or a relative thinking about having a baby? WHAT: THE GENE SCENE – An FD NOW “Ask the…