Founded by The Slaw Family, FD NOW is a 501(c)(3) tax-exempt organization that funds groundbreaking research for FD patients.

Our Vision

To ensure that those with FD will enjoy long, healthy, productive lives.

Our Mission

To discover new treatments and cures for patients with FD.

Our Goals

To deliver safe, effective treatments to the FD community by funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

To provide support to and advocacy for FD families and promote education and awareness to the medical community and public.

Our Mantra

“And if not now, when?”

“V’im lo achshav, eimatai?”

FD NOW If not now when