Spearheaded by Carol U. Alterman, Florida Regional Representative of FD NOW, the FD NOW 5K Run/Walk for a Cure attracts over 200 runners. This South Florida event raises over $30,000 to benefit the Laboratory for Familial Dysautonomia Research at Fordham University in New York.


2014 – Eric Crosses the Finish Line

Ericandhismomatfinishline914142014 – Eric Hugs His Mom, Carol, After Crossing the Finish Line

Carol and Steve2016 – Steve and Carol Alterman Running in Eric’s Memory


2016 – Honoring Eric’s Memory at the Finish Line


2018 – Raising FD Awareness

2018 – Honoring Eric’s Memory at the Start Line

In 2014, Eric Alterman was cheered on by the crowd as he approached the finish line at the first annual FD NOW 5K in Davie, FL.  Friends pushed Eric in his wheelchair for the majority of the race, but was encouraged by his mom, Carol, to see what it felt like to cross the finish line on his own.  Flanked by his parents and friend Savannah, Eric did cross the finish line and then joyfully hugged his mom.

In 2015, Eric passed.  In 2016 and 2018, Steve and Carol held a 5K in Eric’s memory.

“This event is highly personal as our son Eric was diagnosed with FD at seven months of age.  For eighteen years, we watched Eric’s highly unstable body struggle through daily activities that to others are automatically regulated.”

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