A long-standing treatment for Familial Dysautonomia has been safely relabeled under a different company name. Green Tea-70, originally produced by the company Food Science of Vermont, is now Green Tea-70 now produced by DaVinci Labs. DaVinci’s formulation is identical to the Food Science of Vermont’s version; both contain the same top-quality amount of a key…
A New York Familial Dysautonomia parent (wanting to remain anonymous) is reporting that their child, under the age of 20 years, tested positive for COVID-19, and is OK. Their child has some prior lung complications, common with FD patients. This child strictly follows the FD treatment protocols discovered by the FD Research Laboratory at Fordham…
Due to the COVID-19 pandemic, the world will be a different place by the time I finish writing this blog post. Everything is changing before our very eyes on a minute to minute basis. We are in a tornado of news; at this singular moment, March 20th 2020 at 4:00pm CST, the top news stories…
Every year, the New York Midreshet Shalhevet FITNESS Team hosts a girls’ night out to benefit FD NOW! Put on your comfy clothes and sneakers for a dance party fitness event with over 150 women and teens. This lively workout raises over $9,000. Raffles, refreshments and fun!
Every March, over 1000 people log on to browse, shop, and vie for over 150 fun, functional and trendy auction items. The bidding categories include jazzy jewelry, timeless toys, fantastic fine dining, state-of-the-art electronics, marvelous memorabilia, spectacular sporting events, practical gift cards, unique fine art and cool collectibles. Also featured are two spectacular properties. The first…
Join us annually for the South Florida FD NOW 5K Run/Walk for a Cure in South Florida. Hosted by Carol U. Alterman, Florida Regional Representative of FD NOW, this exciting fundraiser attracts over 200 runners and raises over $30,000 to benefit the Laboratory for Familial Dysautonomia Research at Fordham University in New York. Contact Information: Call…
In spring, donors gather together in NY to benefit FD NOW. The event attracts over 200 dinner guests and raises over $100,000. The fundraiser memorializes David Z. Herman, whose teen granddaughter is afflicted with FD. At dinner, Drs. Rubin and Anderson presents an update from the Laboratory for Familial Dysautonomia Research at Fordham University in New…
Periodically, FD NOW features various experts to address specific needs of the FD community. Our next series, THE GENE SCENE, will be virtually held on Tuesday, October 19th at 7:00pm CST. Register below. WHO: Are you or a relative thinking about having a baby? WHAT: THE GENE SCENE – An FD NOW “Ask the…