A long-standing treatment for Familial Dysautonomia has been safely relabeled under a different company name. Green Tea-70, originally produced by the company Food Science of Vermont, is now Green Tea-70 now produced by DaVinci Labs. DaVinci’s formulation is identical to the Food Science of Vermont’s version; both contain the same top-quality amount of a key…
A New York Familial Dysautonomia parent (wanting to remain anonymous) is reporting that their child, under the age of 20 years, tested positive for COVID-19, and is OK. Their child has some prior lung complications, common with FD patients. This child strictly follows the FD treatment protocols discovered by the FD Research Laboratory at Fordham…
Due to the COVID-19 pandemic, the world will be a different place by the time I finish writing this blog post. Everything is changing before our very eyes on a minute to minute basis. We are in a tornado of news; at this singular moment, March 20th 2020 at 4:00pm CST, the top news stories…
Every year, the New York Midreshet Shalhevet FITNESS Team hosts a girls’ night out to benefit FD NOW! Put on your comfy clothes and sneakers for a dance party fitness event with over 150 women and teens. This lively workout raises over $9,000. Raffles, refreshments and fun!
Every March, over 1000 people log on to browse, shop, and vie for over 150 fun, functional and trendy auction items. The bidding categories include jazzy jewelry, timeless toys, fantastic fine dining, state-of-the-art electronics, marvelous memorabilia, spectacular sporting events, practical gift cards, unique fine art and cool collectibles. Also featured are two spectacular properties. The first…
Spearheaded by Carol U. Alterman, Florida Regional Representative of FD NOW, the FD NOW 5K Run/Walk for a Cure attracts over 200 runners. This South Florida event raises over $30,000 to benefit the Laboratory for Familial Dysautonomia Research at Fordham University in New York. 2014 – Eric Crosses the Finish Line 2014 – Eric Hugs…
In spring, donors gather together in NY to benefit FD NOW. The event attracts over 200 dinner guests and raises over $100,000. The fundraiser memorializes David Z. Herman, whose granddaughter is afflicted with FD. At dinner, Drs. Rubin and Anderson presents an update from the Laboratory for Familial Dysautonomia Research at Fordham University in New…
Periodically, FD NOW features various experts to address specific needs of the FD community, affiliates, and donors. Prior events include The Gene Scene, where FD NOW partnered with the Jewish Genetic Disease Consortium (JGDC) and JScreen. This event outlined the most up-to-date information on genetic testing for FD and other genetic diseases. A renowned…