November 12, 2019

Slaying the Crisis Monster

In the world of Familial Dysautonomia, what is a crisis and what causes crises?  Like most disorders, FD has its own unique vocabulary describing its characteristics.  For example, migraine sufferers experience “auras.”  Epileptic patients have “seizures.” Those with FD endure “crises.”  There are many textbook synonyms for crises including vomiting attacks, hypertensive crises, and autonomic…

Dealing with PTSD in the Familial Dysautonomia World – An FD Parent Perspective

In a previous blog article, we explored what it’s like for someone with FD to deal with PTSD, also known as post-traumatic stress disorder.  This article explores PTSD from the FD parent perspective.  Just to review, PTSD often occurs with military veterans.  On the battlefield as soldiers, they suffer great trauma, dodging enemy bullets that…