“We just found out that we are pregnant, and the fetus has familial dysautonomia. Should we have an abortion?” As both the president of FD NOW and as a mom of a young adult with FD, I’m asked this question every so often. Each time it is heartrending. The conversation usually beings something like this,…
Recent news reports indicate that Zantac contains a very small amount of a carcinogen called NDMA. After spending several hours trying to learn more about the risks associated with the ingestion of NDMA, I am finding that the information currently available provides no clear answers. There is no question in my mind that Zantac (and…
Most of us probably associate PTSD, post-traumatic stress disorder, with veterans. The classic example occurs when soldiers returns from war. Back on the battlefield, they suffered great trauma, dodging enemy bullets that could take their life at any time. In civilian life, when they hear a car backfire, they are instantly reminded of the gunshots…