I am the mom of a child with Familial Dysautonomia (FD) and, for over two decades, both my husband Ken and I have been extremely active in the FD community. We founded the Familial Dysautonomia Now Foundation (FD NOW), a 501c3 tax-exempt, not-for-profit organization, to support the critical work of Dr. Berish Rubin and Dr. Sylvia … Continue reading Message from the President