Champions With Familial Dysautonomia

"If I had to describe FD to a stranger, I’d tell them that FD is a Jewish genetic disease that affects the nervous system. The best treatment I’ve experienced so far is the tocotrienols because they just make life better!"
Andrew, Illinois

"If I had to describe FD to a stranger, I would tell them that FD is not fun.The best treatment for FD I've experienced so far is tocos they make me feel big and strong."
Bayla, New York

"If asked, I would tell a stranger that it is a bad disease. The worst thing about having FD is the painful stomach ache & feeling sick & dizzy (when in crisis). I also wish I could do more sports activities like my friends."
Daniel, England

"If I had to describe FD to a stranger, I would tell them that FD is HORRIBLE DISEASE!  The best treatment for FD I've experienced so far is TOCO's because THEY MAKE ME STRONG AND MAKES MY FD NOT WORSE."
Danny, Florida

"If I had to describe FD to a stranger, I would tell them that FD is a disease of the autonomic nervous system.The worst thing about having FD is that it's unpredictable."
Dustin, Illinois

"FD is when my blood pressure gets low and I get wobbly. I can’t eat certain foods and I can’t do some stuff like other kids can do.The best treatment is the tyramine free diet because I don’t go into crisis as often."
Emily, Australia

"The worst part of having FD is the retching!"
Eric, Florida

"FD is a learning experience. Worst thing is learning the hard way how to understand what puts me in a crises and how to avoid it. I have 3 part time jobs, I have friends, a boyfriend and a dog, Jake, who I love a lot. I wish everyone happiness."
Laura, New Jersey

In Memory

Dani                                   Rachel