FD NOW - Familial Dysautonomia Now

FD is an abbreviation for Familial Dysautonomia, a rare, fatal, genetic, neurologic disease present at birth. Kids with FD live in very unstable bodies.  All their internal functions are unpredictable. They are prone to wide swings in blood pressure and heart rate, rapid decline of oxygenation and life-threatening autonomic crisis.

Ann and Ken Slaw and other FD families and friends founded FD NOW, a 501c3, to raise funds to support research that will drive better treatments and cures in two years or less for patients with FD.

Our Vision
To ensure that those with FD will lead long, healthy, productive lives. 

Our Mission
To discover new treatments and cures for patients with FD.

Our Goal
To deliver the next safe, natural substance to the FD community in two years or less by funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

Additional Activities
To provide support to and advocacy for FD families and promote education and awareness to the medical community and public. 

Mantra

"And if not now, when?"

"V’im lo achshav, eimatai?"